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- David W. Bates, MD, MSc
- October 22, 2005
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- Background
- Pilots
- Vendor Selection
- Conclusions
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- 6.4 million people
- 1 million age 65 years or older
- ~88% white
- Relatively few payers
- BCBS
- HPHC
- Tufts
- Fallon
- MassHealth/Medicaid
- 500,000 Uninsured
- ~80 Acute-Care Hospitals
- ~18,000 practicing physicians
- ~6,000 office practices
- ~3,000 solo or 2-3 physician practices
- Highly ranked for quality (HEDIS, CAHPS)
- Among the hospitals:
- 10% have CPOE
- 20% are implementing
- 70%???
- Among the office practices:
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- Alliance for Health Care Improvement
- American College of Physicians
- Associated Industries of Massachusetts
- Baystate Health System
- Beth Israel Deaconess Medical Center
- Blue Cross Blue Shield of Massachusetts
- Boston Medical Center
- Caritas Christi
- Executive Office of Health and Human Services
- Fallon Clinic, Inc.
- Fallon Community Health Plan
- Harvard Pilgrim Health Care
- Health Care for All
- Lahey Clinic Medical Center
- Massachusetts Business Roundtable
- Massachusetts Coalition for the Prevention of Medical Errors
- Massachusetts Health Quality Partners
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- Improve quality, safety, and affordability of health care through:
- Universal adoption of modern information technology in clinical
settings
- Access to comprehensive clinical information in real-time at the
point-of-care
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- Finalist communities
- Boston HealthNet
- Emerson Community EHR Collaborative
- Greater Brockton eCare Alliance
- Greater Newburyport Community
- Holyoke Community
- Northern Berkshire Community
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- Purpose of agreement is to lay out the “rules of the road” for data
exchange in each community
- Not a user agreement – no vendor or technical solution identified yet
- Provide enough info to physicians for them to feel comfortable signing
participation agreements
- Lays foundation for creation of Community Network Organization (CNO) to
manage exchange network after pilot period
- Steering Committees and MAeHC will oversee network vendor and
governance during pilot period
- Sets basic ground rules
- Network is by membership
- Exchange network is for patient care only
- Physicians must make data available to network as permitted by patient
consents
- Network not a substitute for medical judgment and other sources of
information
- CNO will take over governance and management responsibilities
post-pilot, but physicians not required to participate after the pilot
period
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- MAeHC and communities need to decide what patient notification or
consent we will require for data exchange in community pilots
- Not required for stand-alone EHRs
- Will be required for data exchange across legal entities
- Data exchange already happens today, and in this sense, we are only
changing the transport vehicle
- Current exchanges happen by fax, phone, mail, email, and remote access
- Community network could change the scale but probably not scope of that
exchange (ie, same type of information will be exchanged but more
often)
- With no “person-in-the-loop”, electronic data access may seem more
risky, whether it is or not
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- Even though we’re just changing the transport vehicle, we can’t rely on
existing notifications and consents to cover exchange over the new
network
- MAeHC commitment to transparency will necessitate some form of patient
notification or consent about new network
- Furthermore, we can’t assume that current entities have gotten patient
consent that conforms with MA consent laws– very likely that many have
not
- Notification about the network is not enough – MA law argues for some
form of affirmative consent BEFORE disclosing data across legal entities
- HIPAA Notice of Privacy Practices does NOT count for MA consent
- MA consent requires affirmative consent for disclosure of clinical
information, and a second affirmative consent for disclosure of
sensitive information
- Question before us now is how to get patient consent in a way that is
legally and ethically robust and operationally sound
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- Entity-by-entity opt-in approach to network for physician network in
MAeHC pilot communities
- Flexible approach to sensitive data
- Require that general clinical information be made available to network
- Allow physicians to segregate and withhold selected sensitive
information if:
- Patient requests selective withholds
- Clinical entity assumes responsibility for segregating sensitive info
- Work closely and continuously with MA-SHARE to align approaches to
achieve a unified strategy for statewide implementation
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- Use of technologies
- Economic evaluation
- Quality evaluation
- Adoption barriers
- Implementation/tactics
- Roles of employers/payers/consumers/government
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- Lots of good progress but still getting started
- Many of issues are social
- Choices about connectivity are complex
- Keys to success:
- All key parties included
- Payers particularly amenable to involvement
- Substantial initial investment
- Strong prior history of benefits of collaboration in state
- Many key organizations already had deep expertise and in place
- Massachusetts Health Data Consortium
- Massachusetts Health Quality Partnership
- Masspro (QIO)
- MaSHARE
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